For parents - other epilepsy organizations

Epilepsy Organizations

Epilepsy Foundation

Epilepsy Foundation — The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.


Parenting Challenges — Parenting Challenges is a site created by Psychologist Judy Loseff Lavin, author of “Special Kids Need Special Parents.” Judy offers comprehensive articles, varying focus on a wide range of relevant child-parent issues, including coping with the struggles of parenting a child with special needs.
You can visit Judy at

Epilepsy Advocate

Epilepsy Advocate — “We are a community of Advocates and caregivers that lets you connect with those who share the same goal of achieving better seizure control. New personal stories, features and events are added all the time, so check back often.”

Epilepsy Therapy Project, — The Epilepsy Therapy Project is a 501(c)(3) not-for-profit corporation dedicated to a singular focus: overcoming the funding gaps and roadblocks that slow the progress of new therapies from the lab to the patient. Epilepsy Therapy Project seeks to improve incentives and encourage commercial investment in new therapies. Acting as both a catalyst and clearing house for innovative research and the early commercialization of new therapies, the Epilepsy Therapy Project brings together financial resources, scientific insights and business expertise from leading academic and commercial industry participants.

Parents Helping Parents

Parents Helping Parents — Parents Helping Parents (PHP) is a parent-directed non-profit resource center offering educational programs, health related services, and support networks for children and adults with special needs. PHP empowers families to become effective advocates and helps both children and adults with special needs reach their full potential and find their valuable place in society.

Federation For-Children With Special Needs

Federation For Children With Special Needs — The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation offers workshops and training, advocacy and resources to parents of children with special needs and the professionals who serve them.

CURE Citizens United Research Epilepsy

CURE – Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.


Dravet Syndrome Foundation is a volunteer-based, non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions.

American Epilepsy Outreach Foundation

American Epilepsy Outreach Foundation —


SUDEP Aware —

American Epilepsy Society

American Epilepsy Society —

TalkAboutIt! —

Neurology Now Magazine

Neurology Now Magazine — —


Danny Did Foundation — The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

CeCe Cares Pediatric Epilepsy Foundation
Sponsor a CeCe Bear with the CeCe Cares Pediatric Epilepsy Foundation

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